It was quite surreal to be leaving Dayton as a family on Friday night and also getting to do something fun. We figured that Ally had not spent the night outside her own bed (or the hospital bed) since September. We weren't sure how long it would all last. She ended up coming down with a pretty nasty cough...and most of Friday night was spent awake (for all of us!). She started getting a fever and at 4:30am it actually reached 100.5. At 101 we have to take her to the ER. We were seriously getting ready to pack up and head home in the middle of the night, but then it started going back down. Needless to say, we ended up staying at the lake. She felt a little yucky on Saturday, but then Sunday and Monday did great. We are thankful that she fought this fever off on her own. She is not allowed to immerse her head in lake water, per instructions from our nurse, so that is a little bit of a bummer. She waded a bit and also went for several jet ski rides/boat rides/paddle boat rides. The weather was about the nicest it has ever been and some of her friends came up on Saturday and made it even more fun.
Oh yea, she finally lost all her hair again too. RATS. I thought she was actually going to sneak by without losing it the last time, even though her doctor kept telling me it would come out. He was right (as always). It started coming out in huge clumps and we had to take the razor to it again. Hopefully this is the last time EVER that anyone in this family has to do it.
On Sunday, we were very touched when we read the article in the paper by Tom Archdeacon. He just did a fabulous job capturing our family. My Dad and I talked to him on Wednesday for about an hour and a half. He came down to Children's on Thursday and spoke to us again and also interviewed Ally (a tough task). I overheard her talking to him about fishing with her Pa. And then came to read that she said she could fish better than him. Here is the link to the article:
I also wanted to include a video of my Dad's remarks to the crowd of 600 at the party last Saturday night. Tom talks about the emotion of it all in his article too, but this way those out of towners or those who missed the party can see it for themselves:
And finally, we just spent the last couple hours of our Memorial Day doing what Ally likes: fishing up at Fox Hill. I was laughing as Dad was baiting her hook and remembering her saying to Tom that she can fish better than him. I told her she got a little bit of her Pa's "bombast"...she says what is that??? Jerad says "that means you're confident". And I said "that means when you do things, you do them well, or at least you act like you do" And about an hour later she had caught four big BASS fish. That's my girl.
Tomorrow is chemo day. The last chemo infusion of this "intense" phase. Next week, count dependent, she should enter into the phase I have been waiting for "long term maintenance." Thanks for following our story and for all the nice emails/calls/etc about the newspaper article!