Wednesday, May 19, 2010

Thanks for prayers

Ally has two more treatments down for this week. She had two more radiation treatments as well as two more ARA-C chemo infusions. She got to see Dr B on Tuesday when we were in clinic. She has been having a lot of pain and trouble with her right foot. She limps all the time and says it aches and hurts even when she is sitting still. He decided to do an x-ray and I guess it showed that some of her bone is deteriorating. They had a fancy word for it, but I was rushing into radiation when I got the call about this and didn't write it down. The culprit for this problem is her steriods. I guess they can cause bone loss. So if it is not better by next Tuesday (which I really doubt it will be) then they are going to do a bone scan on her. For now, she has us wrap it up and I try to limit her walking.

We found out her ANC is 700, not too bad, but definitely on its way downward. After the four doses of chemo this week it should drop very low. In fact, I told him my worries about the what if she would get a fever?!? And he told me that she would probably end up having to be inpatient. So we just have to all pray really hard that doesn't happen. Because we have so many people coming to the event. I seriously think we could go up towards 600 people.

Every night before she gives her Mommy her kiss goodnight I make her recite three times: "I will not get a fever. I will not get a fever. I will not get a fever." She thinks I am crazy. Well she knows I am crazy anyway. I am calling it the power of positive thinking.

So so so many people are supporting us by coming on Saturday night. I get all choked up just thinking about it. Wait until you see how many fine people have contributed things for us to auction off and raise money for our cause. We have all kinds of services that people are donating (an orthodontic package!) to huge sporting events...dinners/food...vacation homes...sports even handmade a huge pottery bowl over the weekend that we will be auctioning off. It is really cool too.

I get extremely emotional even thinking about how I can thank all of these people. I am not sure I can even do it. When something so bad can happen to us, but then we can take it and turn it around and do something so good. That's what life is all about. Jerad's dad has this poster about priorities hanging in his kitchen. I always remember it. It says something about how at the end it doesn't matter how big the bank account is, or how many hours you worked, or how many clients you had, but rather how you made a difference in the life of a child. He is right. And in fact that is his priority. (and by the way, Happy Birthday John/Dad/Grandpa)

My heart is especially heavy tonight as we learned one of the "hospital family" has had her cancer return. For the fifth time. You read that right...FIVE. She has Wilms Tumor (a fancy word for kidney cancer) and it is devastating news. She is just about Ally's age. Likewise, I mourn for those suffering and those we have lost. Our friends who lost their daughter to leukemia in the fall (Ashley) are coming to our event. How brave of them and how grateful I will be to have them there. We will remember all the children (and adults) suffering as Ally's Army Battles Cancer.


  1. It was so nice to finally meet you! The boys had a wonderful time and our four year old, Lucas, has decided he wants a house/property exactly like your fathers. It is so beautiful and we all loved the short time we spent up there this evening.

    I love reading your posts...your thoughts...your heart...your honesty. Don't stress the Thank Yous, everyone already knows how much you appreciate all the help and knows how much is on your plate right now. So, take that right off your worry list and know that you have hundreds (literally) and probably thousands who see your Thank Yous everyday and all the lives you've touched (children & adults).

    We will send positive thought your way for this weekend and to all the families going through such tough times. You've touched my heart!!! Thank you.

    See you Saturday night!

  2. Janelle,
    I had to shake my head and chuckle at your worries... the hundreds of people that are coming to the benefit this weekend want nothing more than to make Ally's (and your family's) journey easier and help all the children who are battling through these terrible diseases. Soooo, if Ally happens to get a fever, I can promise you that not one single person will be dissapointed or expect anything less than you putting the benefit completely out of your mind and taking care of your little girl. I would certainly LOVE to see little miss Ally (and you!)... but this is just one night, and I'm praying that she'll have a billion more nights ahead of her. As for the thank you's... I suppose I shouldn't speak for anyone else, but if I had to guess it would be thank you enough for everyone to see you and your family relax and enjoy yourself and let your stress and worry melt away for the night. Take care of yourself and don't push yourself too hard.
    Sending lots of love,
    The Bohmans
    Mike, Shelly, Ashley, Kenzie and Hailey

    Janel, regardless of what happens tomorrow, this event is already a hugh success. You and the family have educated many folks about leukemia. Together with the love and support of "Ally's Army" leukemia doesn't stand a chance. You all are true warriors, who in the end, will beat this. Will see Saturday, even though late.

  4. Janel, I am sure that tomorrow will be absolutely awesome, I am so sorry that I am so far away and cannot attend. But do know that I am there in spirit supporting you and your family. We are all doing this because we love you and want to end this terrible disease for all children. I thank you for all that you and your family have done and are doing to raise awareness of leukemia. You could just hide in your own little world but you have chosen to fight publicly and to help many, many others. Know that our thoughts and prayers are with you always. No fever, good luck and hugs and kisses to all of you and your dad. Miss you.

  5. Congratulations, Janel! Your family is amazing at galvanizing people and making a difference. You make a difference. I hope you realize that 600 people and all of the donations of stuff are given just because people want YOU to know they support your family. No one is looking for thanks, so I think you should stop worrying about that. Once again, I wish we were closer. We'd be there for sure. We'll be there in spirit though. And look forward to some photos.

    So tonight I'm saying a prayer for Ally's bones, and for peace for you. You deserve it.