Thursday, February 25, 2010

Interim Maintenance, my favorite

I have a good report which always makes me happy. Ally continues to do remarkably well through this phase of chemo. I am thinking that this is my "favorite" phase that we have had so far. Sad to say, but true. In my "before" world, this is how I would have expected chemo to be. Get the chemo, be sick for two or three days, and then move on. That seems to be how this phase is going. The others, not so much.
She has gone to school three days this week and will most likely go tomorrow too. That has to be some sort of record! I knew things were good on Tuesday afternoon. My cousin's wife, Julie, has offered to teach the kids private swim lessons. She came to pick Evan up and Ally wanted to go too. She put her suit on and did the "older kids" lesson and according to Julie she did great. Never tiring. Exercise is so good for her and especially swimming on her joints. It made me very happy.
We have a few more days and then she goes back in on Monday morning for more chemo (Vincristine and an even higher dose of methotrexate)...then Tuesday she has to go back for the PEG leg shots. You may remember that this back-to-back combination sent her straight to a wheelchair last time. So who knows. Oh, and we will be also be there on Thursday when Evan sees the cardiologist. Maybe I can get some sort of parking spot or name badge or something since I am there so much. Although there is really no better place to be because they are saving my daughter's life!
Please say an extra prayer for our baby Lincoln tonight. He is currently in the intensive care unit and I can't get him off my mind. I have been woken up the last two nights in the middle of the night with a strong urge to pray for him. We just spent all afternoon on Friday with him in the clinic, but things change quickly and I am praying for his miracle.


  1. Great news for Ally and I will say an extra prayer for Lincoln. Swimming, how awesome is that, remember all those practices. Here is to a good end of the week and and fun weekend. They should have frequent visit miles for Children's just like the airlines have frequent flyer miles. Take care

  2. I was so happy to hear that Ally went to swimming class and really did well. I will be thinking and praying for baby Lincoln and also all the other children.