Sunday, May 20, 2012

Bio - Rally for Ally

Ally is continuing to do very well.  We have been spending a lot more time at the hospital lately as she undergoes testing regarding her constant weight gain.  We met with a doctor in the Lipid Clinic and he has asked for some very thorough tests to be done.  (which I think we finally have them all complete).  They are looking at a lot of different things...her resting metabolic rate, insulin levels, hormone-type levels, etc.  With the cranial radiation that she had it can affect her pituitary gland (growth/metabolism, etc) and the large level of steroids that she had can also contribute to this problem.  We go back to the hospital on Tuesday to learn the results and come up with a plan.  I do have to say she has been working super hard to keep her weight in check with 3x a week Zumba classes and a constant monitoring of her diet.  For the most part, we think she is getting a little bit better with her belly pain (I say this but she was up a few times with it last night)...and she is also sleeping better.  Praising God that he has delivered us to this place we are in now. We just want to be a regular old family!  Of course we know that we will always be different.....check out this biography that Ally wrote for the end of year book for her was all good until I read the last still amazes me.....and it still will always define who Ally Barnett is.

Ally Barnett

My name is Ally. I was born October 10, 2001. I am ten years old. I was born in Ohio. My favorite food is pizza and my favorite dessert is cheesecake.

My family has five members: my mom, my dad, my sister, Carly and my brother, Evan. My sister Carly is four and my brother Evan is seven. I have two pets: my fish Trooper and my frog Swimmy.

I like to play Skylanders on the Wii with my brother and play outside with Carly. I like to do Zumba with my friend Madison Booher and our moms. It is so fun!!!! I also like to read, write, cook and swim. I am on Idle Hour swim team.

When I grow up I want to be a nurse because I have spent so much time at the hospital. When I was seven years old I was diagnosed with cancer and did two and a half years of chemotherapy treatment.

I also wanted to post the information for the 3rd Annual Rally for Ally that I mentioned in my last post.  It will be held on June 16 this year.  Here is the information on it!  We are so grateful for the support for Curesearch and for this fun event.  Thanks Lori Fultz for always continuing to make a difference. 

Rally for Ally Link


  1. We're glad to hear that Ally is doing well and look for forward to hearing more of her story in the future. We celebrate the gift of life and our mission is to try to help others enjoy it as much as possible. Learn more about what we do here:

  2. Feeling so sorry after reading about this little cute baby may God heal her and give her long healthy life . Best of luck dear