Monday, April 16, 2012

Fundraiser for three local heros

Thank God for good blood counts!  After worrying most of the month over what was probably a bad blood sample....Ally got a good report on her blood.  Her hemoglobin and platelets were back up  and her ANC was the highest I have seen it (4500).  I am always grateful to get good news..just wish I didn't have to worry for a month before it!  Ally also had a sinus infection for pretty much most of the month.  She ended up doing 10 days of antibiotics and now that is gone too!  Her brother and sister have both had a fever this past week.  I am hoping that she doesn't get it.  (If so, it will be her first fever that we don't have to rush to the hospital within an hour.)  Fevers with her still scare me so I have been going through a large amount of lysol and wipes!

We are still dealing with issues with her weight.  We watch every calorie that we can and we are pretty strict about what she eats.  I hate that my 10 year old daughter has to count calories.  We also try to exercise every day.  She has started doing Zumba classes and she really likes them.  So now we are considering this Ally's "sport" and making it a priority.  Just like any other child would go to their sport practice, we are trying our best to do this with her. (well we is actually me since Jerad really wouldn't want to do this, hah!)  She even got a few of her friends to go with her which makes it all that more fun. 

Unfortunately, all of these attempts to mitigate her weight gain have not seemed to help much.  So Dr B recommended we go to the lipid clinic at the hospital.  They can do some testing of her metabolism and hormones and see if all the chemotherapy (and more likely her radiation) has affected her.  I remember when doing the radiation at UC the docs there mentioned it could affect some of the glands (thyroid, pituitary, etc).  Maybe there is some outlying reason why she keeps gaining weight.   They will test all of these things at the clinic and hopefully be able to help us.  They shared with me that 50% of ALL survivors have a weight problem throughout their life.  But if that is all I have to worry about I will take it!  They just want to get a little more involved so as to avoid other issues (diabetes etc).  So one more area of the hospital is going to have a Barnett visit. 

We were pleased to finally get the opportunity to go the Emily's Beads of Courage Dayton Dragons game.  This is a game just for the Hemoc kids with their families and their nurses!!  We have missed this the last few years for various reasons.  I got the chance to thank Emily's mother for providing these beads for our children.  Ally has "worked" really hard to earn her beads.  She is immensely proud of them and so am I.  I truly value them as one of our most precious things. (if the house were on fire, I would grab them!)  When she wanted to take them to school to show her classmates I became very nervous.  Scared they could get lost, stolen, etc.  But they came home safe.  Here is a picture from the game of my three heros in life wearing their beads:

Kayleigh, Caulin, and Ally.....all three ALL leukemia kids from Beavercreek! 

I loved watching these kids interact at the game.  They sat and compared beads and chatted.  They truly have a kinship like no other.  Only they can understand what it is like to go through cancer treatments as a child.  They are all only about a years difference in age too.  And I believe all three will grow up to be extremely compassionate people in the world and will go on to do great things.  While their siblings were complaining of the cold complaints from these three! 

And last but not least, I wanted to let you know about a couple fundraisers.  The first one is going to be at the Beavercreek Golf Club this Friday night (20th).  It is a shopping event with all proceeds going towards Curesearch for these three kids.  Ally's Army, Caulin's Crew, and Kayleigh's Crusaders.  Please consider attending if possible.  All three kids plan to be there!  (I will be at the retreat for Dayton Children's but Ally should be there!)  We are grateful for any money raised for this awesome organization.

Another event is being held at Charming Charlie's at the Greene Sunday night.  This is for a great doctor at Dayton Children's who is running for LLS woman of the year- Dr Patricia Abboud.   All the money raised goes to Leukemia and Lymphoma Society.  Man/Woman of the year is the event that Ally was the honored hero for last year (and which Dad ran for the year before that).  We are going to this event too.

Charming Charlie's (next to Von Maur) $10 admission, gets you 20% off your entire purchase!  There will be a raffle and refreshments too!  The store will open JUST FOR THE EVENT from 6pm-8pm.

Thank you Ally's Army for continuing to pray for our girl.

1 comment:

  1. Shopping for a Cause...Oh I Love it!!! Hope My HUbby Loves it too!!!

    Kayleigh, Caulin, and are Beautiful Souls!!! So dislike God's Plan for you at this young, young age :o(

    So, so excited about your future and all the ways you will use the strength, courage, compassion, ability to kick cancer's make the world a better place!!!

    Much Love and Prayers,
    Kac Family