Sunday, October 25, 2009

Sunday Update

Ally continues to get worse. I was expecting it to get worse before it gets better. She is still refusing all talking and eating and doesn't hardly move. I just think she is trying to stay as still as possible to avoid any pain. The pain seems to be mostly in her throat where the sores are located. Unfortunately, her ANC has dropped to a very low point (130) which means she has no ability to fight anything off. She has no white blood cells to fight any sort of infection so they are also keeping an eye on her toe. (it was infected last week) Today they have increased her level of morphine to a point to make her more comfortable but not sedate her completely. We do not know her methotrexate level, because the machine in the blood lab is broken. They are talking about sending it to another hospital to get it tested (another boy up here needs the same test)

She really really wants an icee. And everything in the hospital is not working or they can't get it or something sad. I have asked and asked. Seriously, I would fly to the moon to get her whatever she wants. I think her Uncle Brad and Aunt Kim are going to bring one down here shortly.

Please keep praying for her sores to heal. They are talking that she will go on a delay before they do this same chemo again. She was originally scheduled to do another one on Sunday Nov 1. I can't even think about doing this again. But I also know they have to do it to take care of the cancer cells. I would love for my girl to be able to trick or treat on Saturday, but I also know we are going to be in the hospital for a while.

Several of her friends have been sending her videos to try to cheer her up. I asked her if she wanted to make a video back, which is nearly impossible because she is refusing to talk. She has been writing notes...so she sent this note back to her friend Madison. So many of you say you would like to see her, so here you go. You can even see that some of her hair is coming back...darker than it used to be.
Jerad and I are trying to hold up through all of this. It is not easy and my body is really hurting from sleeping (or actually not sleeping) in a chair all night. Evan and Carly seem to be a little off now that we are going on 9 days of them being shuffled around. We can all take it though...anything for our Ally. Thanks to the Boohers who have pretty much been taking them everyday and Grandma who drove down to help out yesterday. We keep joking that the Boohers should actually move in with us now that they are doing everything. Thank goodness we have friends like them. Not everyone does, and I always count myself grateful that I do. How can I ever repay?

Poor Ally was actually crying in her sleep. Just hoping that the medicine can do what it needs to and take the sores away. I was researching the sores and most of what I saw is that this is the #1 complaint and #1 most painful side effect that cancer patients go through.

Thanks for praying for all of us.

13 comments:

  1. Janel, in a time when there are no words, please know I am with you in spirit. Whether or not this provides you with any comfort, I do not know, but I am always thinking of you and your family. Thank God for the Boohers and your family there. This too shall pass, I am certain, though not fast enough for any mother.

    ~love~

    Amanda

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  2. Sweet Ally with her sign ... These are such tough times and how I wish things would improve IMMEDIATELY. I don't know why you guys have to go through this. Here's just one small wish for the sun to shine on you all, very soon. God bless you and keep you. And thank you to the Boohers!

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  3. Precious little Ally with her sign... All of this is just totally unacceptable to me. I want to make it all go away. I am grateful for your ability to take such good care of Ally. Thank you, Boohers, for taking such good care of the Barnetts.

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  4. We are praying so HARD for those sores to heal and for Ally to feel better. Thank heavens for GREAT friends like the Boohers so you can concentrate all your efforts on getting Ally well. Ally is such a strong girl. The strength you and Ally have is awesome and an inspiration for all of us.

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  5. I check your blog and pray for you all the time. I often wish I were still in Ohio, so perhaps I could do some small thing to be a little helpful. So, from Virginia, I just want you to know that I'm praying and keeping the vigil with you in the small way I can, by checking your blog every day. Love from VA.

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  6. I hope Ally had a better night last night and is turning a corner today. We're still sending up prayers for you and the Boohers now too! Take care my sweet, and let's hope for the break for a fun trick or treat, what's she going to be?

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  7. Praying very hard for Ally, and so sorry that you are all going through this. Maybe the friends in your neighborhood would be willing to do a second trick-or-treat night when Ally is feeling up to it, and then she can still dress up and get treats, and have fun with her friends. By the sounds of the great support you have in your friends and neighbors, I'll bet they would jump at the idea! :o)

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  8. I am getting the whole neighborhood here in Florida to pray for our Ally. Hang in there, together we will get through this, you are wonderful people with wonderful friends. We will keep the prayers coming hard and fast. Love you guys.

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  9. Poor Baby. It kills me to see her in pain. Praying for her and just willing her to get better. I'm here, per usual, if you need me. I know it's a broken record...
    Hang on - good times are coming again - it doesn't feel like it right now, but they are just around the corner. This is a hugely tough season - but you know how seasons are - they always change. LOVE YOU!

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  10. I've been worrying about you guys for days and checking the blog incessantly. We're praying extra hard for you guys this week.

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  11. The faith of a mustard seed - I know you have it. You are a pilar of strength. Praying for you and your extended family as you continue to battle this together.

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  12. Ally is definitely in our prayers

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