Normalcy?

We are all feeling a little better today. I think this is because I am feeling like a small bit of normalcy is returning. Very small still, but maybe we are getting the hang of this. It is so hard to believe that it has been just about a month. I was soo soo happy this morning when Ally sat on the floor and played with her baby sister. Of course, they were playing doctor with all of her stuffed animals. We even had a port with tubing coming out of her big teddy bear that Pastor Gil gave her . Hey, that is her life right now, I was just happy she was doing something.


After lunch, I finally convinced her to go to the pool. Ok, maybe I TOLD her we were going to the pool. Again, I want Evan and Carly to have some sense of normalcy, but I do have to be considerate of Ally's general feeling of the day. Compromising is the name of the game. So we went for about two hours! She sat under an umbrella with Madison and gave manicures to almost everyone at the pool (including boys). She had a few snacks and made a beaded necklace. It was hot too! We had a little fan going on her. At one point, for maybe 5 or 10 minutes, she got into the pool on a raft. I floated her all around and she said it felt good. Baby steps......


I know this all seems very very normal. Nothing too exciting. But normalcy is what we are striving for. I would love to have some predictability to my days, but I do not. (Other than the fact that I am either in my bubble or in the very-diluted-of-germs outside air)


Speaking of my bubble...lots of people are stopping by the house. And that is all good by me. I love to be around people. However, I have totally had to throw the notion that my house will be neatly picked up out the window. People are just gonna have to see what a house looks like when I am playing nurse to a leukemia patient, while also caring for a 4 year old and a 2 year old. It is not pretty. But that's ok, I am getting used to it. It is just a warning to all potential visitors. I am typically organized, but not right now. I almost fell over today when I opened up my coat closet. This is where my laundry chute empties into a hamper. The hamper is overflowing...there is about 2 feet of laundry on the top...then I look up and notice that laundry has backed up about halfway into the chute! Please, no offers to do my laundry!! I am not asking for help, just laughing at how we all just have to roll with it. On that note, I better go help my lovely husband who is currently folding laundry.




Keep praying for more days like today. And for that MRD to be less than .01% Day 28 is coming quickly.

PS...I am seeing that I have 96 official "followers" to this blog. However I know there are many more people lurking behing the scenes, which is fine. But I am hoping to get my followers number to over 100. Who will be number 100?