Our hospital free days were numbered...Ally had to go back to the hospital today to get an infusion of platelets. Her number was 21k and they are really supposed to be over 100. Anything less than 30 and you have to do the infusion. Her Dad ended up taking her....I had an appointment to go to. We were disappointed to find out her ANC is still sitting at zero and thus there is no way they will be able to start the next round of chemo on Friday. With the Thanksgiving holiday, there is little chance they will be able to do it next week...so we are looking at a ten day delay. I really hate the delays because it is prolonging this whole process for us. I wanted to be done with the intense stuff by next summer, but we keep adding time to our bill.
I am having my own medical dilemma right now. Today I had to get an xray, a CT scan, and an ultrasound. I got two shots. I got three prescriptions. I am still not even sure they know what is going on with me, but I am in some severe pain. (thus the lack of blogging yesterday and short one today) The whole time it seemed like not so big of a deal since I have watched my daughter go through so much. I would always rather it be me, of course. She is my inspiration through everything.
She wants to go back to school, but with an ANC of zero, I can't let her. We will see about next week.
Thanks to Erin Cobb for all the supporters you sent to comment on my blog yesterday. I have made several good friends on the internet..you know who you are....and I am so happy to have made friends as a result of this blog.
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Oh, Jammer, I hope you are doing okay! Be sure to take good care of yourself. I'm so sorry Ally keeps needing more time at the hospital. I keep up on her progress everyday on your blog and pray for relief for her and all of you. You're doing such an amazing job of mothering even as you're being tested in the most difficult way.
ReplyDeleteWishing you strength and courage to continue to face these challenges,
Alli
I found your blog way back when Erin Cobb first posted it. I am a faithful reader. Even though I don't usually comment, I do pray for you and your sweet family. I hope you will get some relief from your pain so that you can enjoy this time out of the hospital.
ReplyDeleteJanel????? What is going on with your health?? E-mail me!
ReplyDeleteAmanda
Wow, Janel, I am so sorry to hear that you are in pain. I'm hopeful that the medicine takes care of the symptoms, and that they get to the root of it quickly. Love from VA.
ReplyDeletePain in any form, with anyone we love, always hurts. I hope you are feeling better soon as I'm sure it's even harder trying to be at 100% for your family right now. Wishing the best for you guys as you get through this holiday season.
ReplyDeleteI am with Amanda, the Queen Bee, what is going on with you? Is this something serious or is it just stress, please give us some details.
ReplyDeleteJanel, I am sorry that you also are in pain. It is hard to hold the fort together when you are not at your strongest. Take care of yourself. The delay with Ally might not be all bad even though it makes the whole process a bit longer. She will be strong and happy for Thanksgiving and that is a good thing. Remember, as tough as it is, one day at a time, try not to look too far forward. It makes this whole thing even more difficult, as Jodi would say, look how far you have come. Prayers for you being pain free, and for Ally's quick recovery.
ReplyDeleteJammer I hope all the results came back okay for you. I'm sure it's so hard to worry about yourself with Ally's health taking a front seat. At least the delay may give you time to focus on yourself and let her and you enjoy the holiday.
ReplyDeleteI am praying for both you and your sweet Ally. May you be strong and have resilience through this whole process. I will be praying and encouraging alongside of you , if you don't mind! your little girl is beautiful and touched my heart. I have 2 daughters myself ages 9 & 8 and can't imagine going through this. God bless you both. Love, tara
ReplyDeleteI was hoping that yesterday's no news= good news....but i guess not. sorry that you are now in pain. i hope you can figure out a way to carve out some time to take care of yourself! I still believe that things happen for a reason, even delays, and dumb cancer, so i'm sure this is true here too. Hopefully this will give you some time to plot your course, and the entire family some time to recover....take care of yourself, too!!!!
ReplyDeleteScary stuff, Janel...keep us posted on what's up with you if you feel comfortable sharing. We're all worried!
ReplyDeleteUrrrrgh! I hate to hear that Ally was back here again. I suppose the only thing I can say is that at least it was just for the day for a transfusion and that she was allowed to go home again. They always say to enjoy the good moments while they last... because I swear, sometimes it feels like they are few and far inbetween. I hope your tests turn out okay and that you start feeling better. I'm sure it makes a little harder to take care of Ally when you're not feeling good yourself. What's that saying... when it rains it pours?! Here's hoping for a drought! Take care and we hope we don't see you for a while!
ReplyDeleteShelly Bohman (Ashley's mom)
I too have found your blog through Erin Cobb's blog...please know your entire family is in my prayers...
ReplyDelete