Things continue to be pretty good for the Barnett family. Ally seems to be tolerating this chemo pretty well. If we could just get her stomach pain under control I would think she would be pretty happy, all things considered. Today we had another "first"....I feel like she is a baby and I am reliving all of these things again. I had to take Carly to her 2 year well visit at 10:30 this morning. So my friend Nicki (with her boys Joshua and Sam) said they would take care of Ally for me. No way am I taking Ally into a germ infested doctors office. So I came back to get her around noon and she asked if she could stay longer. Keep in mind that she has barely left our house or gone with anyone. She did a few times, but only for an hour or two. They were having so much fun doing homemade play dough and science projects that I told her she could stay. I checked on her a few times, and then she finally came home at 4pm. She needed her IV antibiotic or maybe she would have just slept there. Wow. I was surprised and so so happy. Of course, it gave me a break, but really I just loved that she "got out" and had a fun day outside of our bubble here.
Poor Carly got a big vaccine shot in her thigh this morning. You would think after all that I have seen and been through that a shot would be the least of my worries. But it still pained me to see my baby girl crying and looking at me with those eyes. Those eyes that I always see from my other daughter that say "why are you letting them do this to me?" Hate it.
Evan and Daddy had a special boys night out at the Dragons Game tonight. We are really really trying to do special things with him. It is rough to be a five year old and have your parents in a constant state of turmoil and to be "stuck" in the house more than he would like. Our friend Jon Kruesch had a box at the game and invited Jerad and Evan. He was more than thrilled to eat popcorn, peanuts, ice cream, and cotton candy. He even brought a hat home for each of his sisters.
One more note. SAVE THE DATE. There is a "Light the Night" walk to support the Leukemia and Lymphoma Society on the evening of October 1. That is a Thursday. I am the team captain for the Ally's Army group. I would like as many people as possible to walk behind her and support her. Of course, I will be trying to raise money for them too. Kids, adults, schoolmates, classmates, coworkers, neighbors, family, and friends. I am working on setting up a web page for it, and more information will follow. I want our army to take over the streets in Kettering and show our support. Nothing will stop Ally's Army from marching on.
Monday, July 20, 2009
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What a great day for everyone! Evan looks so happy at the game. And I saw the pics of Ally on Nicki's blog and it looks like she had a great time too. Hoping these good days continue on. And of course I'm there on October 1!
ReplyDeleteJanel,
ReplyDeleteI will be ready for the Walk. Days before our Stonehill Walk for Children's Medical Center. All for such a great cause. Glad to hear that the past few days have resembled normalcy. Each day brings a NEW for the family and the Army. Keeping all of you in my thoughts and prayers.
You are ALL doing great.
M
Sign up the Winger family of 4! What a magical night that will be. It gives me goosebumps just thinking about it! :-)
ReplyDeleteJanel, I would LOVE to particiapte in the "Light the Night" festivities, but am in AZ. If you are interested,I would like to fundraise with/for you via my jewelry business. If this is something you are interested in doing, please contact me. I have done something similiar for a friend of mine from highschool through March of Dimes as well as donations to the Susan G. Komen breast cancer walk. Let me know. I would LOVE to help!!
ReplyDeleteAmanda
You know we are in. The Boohers
ReplyDeleteWe're sooooo there...
ReplyDeleteThe Martin's
I will put Oct. 1 on my calendar. Hopefully, at least Avra and I will be able to join the walk. (I know Steve will want to be there if he can, too.) Love, Alli
ReplyDeleteThe Brownells are totally in!!! Maybe we will bring along our Raider boys! :)
ReplyDeleteHey Janel, if there's anything those of us who aren't local can do for the Light the Night event, would you post about it? Would love to take part in some way! So glad to get on today and read these positive updates about how things are going with your family. Will continue to pray for more ahead!
ReplyDeleteJanel,
ReplyDeleteHang in there. Our thoughts are with you and your family as you all bravely take one day at time. Although your daugther doesnt know me, just tell her there are people out there like me who are praying and pulling for her.
David House
Count me in for the Light the Night walk on October 1!!
ReplyDeleteLove the picture of Jerad and Evan! :)