Piano Recital

I wanted to share Ally's first piano recital with you. I think her song (called Starfish at Night) is only 40 seconds or so...but I thought she did a really nice job. It is hard to get up on stage in front of a group of people and she has only been playing the piano since September. I know from personal experience it is hard to learn piano too! We were very proud of our daughter, who looked so grown up that day. And in typical Ally-fashion....she said she was not nervous at all. Man it takes a lot to rattle that girl! I am still not sure what does!

She has been feeling okay. Some belly pain, as usual. I did take her to get counts again last Friday and she shot back up to 3500. Again, they want the number about 1500. So, we will see what the doctor says. I am feeling more and more convinced that she needs more chemo because she has gained some weight. The dosage they started last summer was based on her weight then...and I think she is up about 10 pounds. We can thank her lovely steroids for that. They never seem to leave her system, even though she takes them 5 days out of every 28. She has such such trouble sleeping and is always hungry and begging for food. Usually food that is not healthy. I definitely try not to give in on this, but sometimes she gets the best of me. After all that she has been through, and knowing the meds are causing it, I have trouble saying no sometimes. But I do think we do a pretty good job...all things considered. She wants to start swimming again for the summer season and the doctor thinks that is the best thing for her. In fact he told me if she was not swimming, he might go ahead and put her into some physical therapy because of her joint pain/tightness, etc. So I am hoping the swimming just works out.

Believe it or not, we are back at the hospital tomorrow (Friday). 28 days just comes so fast. It is a regular chemo day, but a bit shorter as she won't be getting the IVIG immunity infusion now that we are out of the sick months. We will see what Dr Broxson says about these ANC numbers. I am feeling less worried about it, even though they went up, because they seem to be hovering in the same area.

Will update more after our hospital visit tomorrow....